Spaghetti Feed for savanah

August 13 at 12:30 PM

Please join us at Friendship Celebration on Aug. 13th at 12:30 pm. This spaghetti feed is a great opportunity to show love and support for 14 year-old Savanah who is undergoing chemo treatment for NF-1 (neurofibromatosis).  Hot dogs will also be served.

Thrivent is supporting this event with a Care in Communities grant. All donations will help with medical expenses. Note: checks may be made payable to FCLC, but are not tax-deductible because they’re for a specific cause.

For more information about NF-1 visit

NF-1 Fact SheetNF-1 Info Graphic


As some of you may know, I was born with a progressive genetic disorder called Neurofibromatosis and have been diagnosed with NF-1.  NF is a genetic disorder that causes tumors to grow on nerves throughout the body and affects one in 3,000 people of all populations. Today, there is no cure for NF.


In the past, I made visits to the Primary Children’s Hospital NF Clinic in Salt Lake City Utah to monitor my NF several times a year.  I have many widespread tumors throughout my body and brain which have now effected my optic nerve tissue with a rapid decline with my left eye sight. This is just one example of the many complications I am faced with. 


In August 2021, I started a new oral chemotherapy to hopefully shrink a brain tumor that is causing me complications. Unfortunately, the turn out hasn’t been what we had hoped for. I am now undergoing a more aggressive chemotherapy treatment to try and save the vision I have left. 

Donate Now

It's easy to donate online*. Click here to go to our giving page. Once there follow the steps below.

1. Click on the "Make a Donation or Payment" button.

2. On the Give Now page, "one time" should be underlined in blue.

3. Click on the Fund drop down menu and choose "other"

4. In the "note" box enter Savanah.

5. In the "amount" box, enter the amount you want to donate.

6. Click the "Submit" button and you are done.

Thank you for your support of Savanah and her family!

*Donations are not tax deductible because they go to a specific person.